Migraine Is Too Much
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I was living away from home. And I just got this head pain that would not go away. And I was also dizzy. And it wasn't anything horrible, but it just wouldn't go away. And so after three or four days, my then boyfriend, now husband, drove me an hour back home to my primary care provider, and he said, Lanie, you are having a migraine.
The hardest thing is, as a mom, my health with my migraines have gotten worse with each pregnancy. So my youngest is 10. She has known me her entire life as being the sick mom. My older two are in high school. They learned at a very young age, unfortunately, of how to make themselves some food, even if it was a peanut butter and jelly sandwich, because I would be laying on the couch, not able to move, feeling awful, and just telling them from afar, this is what you do next.
I'm very sensitive to different medicines, so some of them will work, but I will have such horrible side effects that I have to make a decision, do I want to lessen my migraine, or do I want to add on 12 new problems into my life? For a little while there, I used the device CEFALY that goes on your head. It eventually became something that became painful to me, so I had to stop.
I've tried Botox, which is a very popular thing. I had a very severe reaction to that, that lasted about seven or eight months. So that's now on my allergy list. I can't even tell you how many things I've tried. I am best friends with different ice packs. Back in the day, and it doesn't hit me as much anymore, but the extreme fatigue, so I would have to go lay down in total darkness.
It is well known to use green light therapy. Some people swear by it. It helps me sometimes. I wear full-time migraine glasses. There's so many different items out there. Some work for some people, some don't work for other people.
Originally, I did not fight for myself. I was fighting, originally, for my daughter. I do have a 10-year-old with migraine. And right away, I guess the mom in me helped me find the fight in me. I am finally on a good path for myself because I have learned to advocate for myself, and just be like, this is about me. For them, it's a job. For me, this is my life, and I need to advocate for myself. And not just for myself, I do help other people advocate for themselves also.
Don't assume that no one cares about you. You will eventually find the provider that is right for you and cares about you, will listen to you, and will help you. And eventually, if that person has tried everything that they know, it's OK to move on to the next person. And just keep fighting for yourself. If something doesn't work, ask for something else, just don't give up.
LANEY
Before migraines, I was never really sick. I was a very healthy child. I was living the easy life until I turned 19. My very first migraine, I remember it very clearly. It was the summer between freshman and sophomore year of college. I was living away from home. And I just got this head pain that would not go away. And I was also dizzy. And it wasn't anything horrible, but it just wouldn't go away. And so after three or four days, my then boyfriend, now husband, drove me an hour back home to my primary care provider, and he said, Lanie, you are having a migraine.
The hardest thing is, as a mom, my health with my migraines have gotten worse with each pregnancy. So my youngest is 10. She has known me her entire life as being the sick mom. My older two are in high school. They learned at a very young age, unfortunately, of how to make themselves some food, even if it was a peanut butter and jelly sandwich, because I would be laying on the couch, not able to move, feeling awful, and just telling them from afar, this is what you do next.
I'm very sensitive to different medicines, so some of them will work, but I will have such horrible side effects that I have to make a decision, do I want to lessen my migraine, or do I want to add on 12 new problems into my life? For a little while there, I used the device CEFALY that goes on your head. It eventually became something that became painful to me, so I had to stop.
I've tried Botox, which is a very popular thing. I had a very severe reaction to that, that lasted about seven or eight months. So that's now on my allergy list. I can't even tell you how many things I've tried. I am best friends with different ice packs. Back in the day, and it doesn't hit me as much anymore, but the extreme fatigue, so I would have to go lay down in total darkness.
It is well known to use green light therapy. Some people swear by it. It helps me sometimes. I wear full-time migraine glasses. There's so many different items out there. Some work for some people, some don't work for other people.
Originally, I did not fight for myself. I was fighting, originally, for my daughter. I do have a 10-year-old with migraine. And right away, I guess the mom in me helped me find the fight in me. I am finally on a good path for myself because I have learned to advocate for myself, and just be like, this is about me. For them, it's a job. For me, this is my life, and I need to advocate for myself. And not just for myself, I do help other people advocate for themselves also.
Don't assume that no one cares about you. You will eventually find the provider that is right for you and cares about you, will listen to you, and will help you. And eventually, if that person has tried everything that they know, it's OK to move on to the next person. And just keep fighting for yourself. If something doesn't work, ask for something else, just don't give up.
